They say eyes are the window to the soul. I wish my son’s eyes had more in them than a blank gaze into a world that I’ve not been able to peek into.

It’s not just that Vedant does not notice the people (and things) around him. He simply seems to be in a completely different place most of the time, looking far beyond the horizon, into a place that is mystical and probably full of joy. I wish I knew where that world lies and what lures him into that world ever so often. If only I had a window to his cosmos.

I’ve always wondered what he thinks. He being non-verbal is not a big help either. Those eyes look like they have a question–a dream probably or maybe a prayer. I’m not sure. I wish I were. Sometimes, just for the sake of talking, I talk to him about different things…I talk about how his day might have been in the school, about who might be visiting us, about what we plan to do later in the evening or about our family back in India. I can see him intently trying to make sense of the deluge of words that I just threw at him, repeating the last word he remembered from that entire conversation, thinking that that was what was expected out of him from this long and perplexing series of sounds. He then retreats into his bubble, with that blank stare that takes him far away from me…again. It’s not that I don’t try. I really do, but then I am from a different world and he prefers a different one and we are still struggling to find a common place for us to meet at.

In a world of his own

Occasionally he would let me in for a very brief moment and I see that gleam in his eyes, that recognition, that connection. What I would give to stay there longer, to know him better and to read his eyes.

He has sometimes tried to come to us and ask for stuff…stuff that we struggle to understand because we cannot make out his fuzzy words. He would ask for it over and over again and finally give up when I fail to make sense of his request. I guess he thinks we don’t understand him well enough and so he prefers his cozy little world over ours.

that far away look

I wonder if those eyes have dreams in them; dreams of a better tomorrow, of going places, of meeting someone, dreams of hope and those of a beautiful life ahead. Do those eyes hold memories of our time spent together, with me, with his dad, with a huge family back in India, memories of vacations and careless summer afternoons, of playing in the snow and of cuddling together under a blanket….or do they wander off somewhere remote, where there is no reminisce of anything this worldly? I wonder if he would ever remember me when I’m gone. He seems so lost, so detached. If only he would let me in.

It breaks my heart that he is with us and still not there, that I will probably never know what he thinks, feels or wants… though I wish I do…someday. Of all the things Autism took away, the most painful is my son’s world that it snatched off of me.

 

tulikaprasad

I'm mom to a beautiful son who is on the Autism Spectrum. I love to share stories and experiences about our journey and learn from other families along the way. Autism has changed our family and our perspective and my mission is to be part of that change that will make the world a more inclusive place for special kids like my son.

View Comments

  • Tuli,everytime you leave me speechless....I know what u go through.You become a bridge betwee Ved and us.I really want to spend some time with Ved and you.may be someday

  • This is so true. My son is exactly the same and when i read this article I felt like someone had read my thoughts and put then down here . Breaks my heart and I can't stop crying

    • Chitra, I'm sure a lot of us feel that way. We just have to keep trying and one day we will find a way in

  • I always was concerned in this subject and still am, appreciate it for putting up.

    • I guess it's something all parents think about . Thanks for reading my post. Please do subscribe to my blog if you liked my posts.

Recent Posts

When my son’s tears brought me joy

There are tears of joy and tears of pain and then there are tears of…

10 months ago

Love Letter from My Son’s Teacher

Autism parenting is difficult, really really difficult. While some days bring hope, others are spent…

1 year ago

Parenting with Purpose: Establishing a Self-Care Plan for Parents of Children with Special Needs

This is a guest blog from Emily Graham. Emily Graham is the creator of Mighty…

1 year ago

Why I will talk to my son more

Speech is not just a tool for communication, it is often a measure of intelligence,…

1 year ago

Scoring against Autism

My son is autistic. The severity of his challenges puts him in the category of…

2 years ago

A message about my son that changed the way I think

Ever since my son was diagnosed with Autism, I have been fortunate enough to have…

2 years ago