A few years back I watched this documentary – “Loving Lampposts”. Although I’ve seen several Autism related content after that, for some reason, that one documentary has stuck with me. The simplicity with which it played out and it’s title, oh the title, so intriguing, so wow! And then it happened one day… I noticed Vedant at a department store, holding a pillar and swinging happily around it. I saw him do the same to a lamp post in the park and to the supporting metal rods of the swing set. Anywhere he saw a post or a pillar, he was at it. Now I know why that documentary was sitting in a corner of my memory, it was to remind the future me that it’s ok, not to worry over these little “quirks”. They are part of his personality. He too just happens to love lampposts 🙂
You know what else he loves? Straws !!! Yes. Those flexible straws that come in all the vibrant colors…they are a staple in my house. You would see them everywhere …the top chewed up and then rejected. The discovery of the straw as his new-found love was nothing short of serendipity.
Like most kids with Autism, Vedant too was used to carrying a chewy tube, though my husband and I were not really a big fan of it. At home we avoided it as much as possible and we certainly would not carry it outside. We felt it made Vedant conspicuous, with a chewy tube hanging around his neck or around his waist. Besides, the tube would eventually start wearing off from its end and Vedant would ingest the fraying silicone pieces. So we were weaning him off of it. He co-operated, or rather, improvised. That’s one Smart kid!
He started looking around for options and he found a solution in twigs. He had a hawk’s eye for them. He could spot a twig camouflaged in mulch or nested within a heap of dry grass, anywhere. He then worked like a connoisseur, sorting them for the right size and thickness and then further inspecting them for their flexibility. The ones that broke on bending at the approximate 1/4th mark were rejected and so were the ones that were too supple to stay bent. Finally , after all that stress test, he would find the perfect twig for himself. It was a long drawn process and I was amazed at the amount of patience and attention he suddenly garnered for this rather tedious task. It was fascinating to see him do something with such dedication! However, no matter how cute it was, it didn’t seem either safe or hygienic to us that he pick up twigs from under that tree that our dogs and some others too would choose to pee on. So this certainly had to stop. Being the compliant child that he is, he did…and then found another alternative…talk about being resourceful!!
My google fence
The DIYer in me had decided to make a cute fence of my own for my flower beds. I bought a bunch of bamboo skewers, painted them with colorful outdoor acrylic paint, and poked them in the ground all around my flower bed in my backyard. I called them my “google fence” because of the similarity with the multicolored Google logo. So, Vedant decided he could pluck out the skewer and use it as his new “twig”. He could chew on it (seeking oral sensory input), bend it at the 1/4th marker and it would still not fall off so he could twirl it between his fingers (visual sensory input- -he liked to see the bent portion spin when he twirled the long stem of the skewer). Now why this was a no-no is pretty clear. Firstly, it chewed away all my hard work—literally :). Secondly, the pointed end of the skewer that was stuck in the dirt went directly into Vedant’s mouth, eww !!! And finally he swallowed some of the bamboo—safe but why , really, why? The splinters could hurt him too.
It was then that a light bulb finally lit up in my mommy mind. How about giving him a flexible straw!!! Genius, right?! It can bend, he can’t really rip it off and eat it up, it can twirl in between his palms and fingers like a twig or a skewer and it’s really inexpensive, around a 100 for about a dollar. The price was definitely an added bonus because for those who are familiar with “Special Needs” products know how exorbitantly priced everything special needs is…talk about taking advantage of hapless parents! It was a match made in heaven. Vedant and the straw. Though it came with some downsides, like walking into a restaurant and suddenly discovering Vedant in a tug-of- with another customer over the straw in their drink, lol!!! We had done the apology drill way too often for us now to remember to hold his hands from either side when entering a food joint until we are seated. Problem solved. I have a stash of straw safely stuffed in my handbag for those sudden urges, meltdowns and behaviors, and a bunch sent to his school too. They like the hygiene that this “disposable chewy” has over a reusable one and it keeps him from eating other stuff in spite of his Pica.
So, apart from loving lampposts, he now romances straws and this time, I don’t have a problem with that.
They say, “I understand” is one of the kindest 2 words that you can say to someone. But is it? Does it really mean they understand? I have come across so many people who have said they understand our struggles, challenges, and even our joys that can come from the most ordinary of things. But…
A few days back, while I was browsing the aisles of a store, my 9 yr old son brushed against another customer. I was hoping it would not be a big deal but she had something else in mind. I said sorry and explained that my son is autistic. She was not ready for that…
Home, kids, spouse, family, friends, work, school…our lives today is so overwhelming and stressed. Now add Autism to this mix. The stress increases manifold and the everyday challenges become far more daunting. The following article from Huffington Post has quotes from parents of Kids with Autism and as I read through it, I found myself nodding…
I recently attended a concert my son was part of. We went in excited, hoping to watch our son perform with the rest of his group, but what we experienced left us heartbroken. Unlike the rest of the kids, he needs assistance, and the organizers promised that he would be “included”. At that time, I…
The great vaccine debate !! If you are not living under a rock, you have an opinion about this. If you have a child or a loved one who is autistic, you are passionately opinionated about it. Many friendships have been broken over these discussions and many a facebook groups turned into battlegrounds. So, ofCourse,…
There are tears of joy and tears of pain and then there are tears of pain that bring joy. Sounds odd, right? Well, when it happened to me it felt even more wired. At 14, being non-verbal and autistic must really mess you up more than ever. That’s where my son is right now. The…
Loved your Google fence.
Colorful , beautiful & looks like a rainbow for me & Ved is already colorful beautiful, just wait Tulika , he will stand out like a Rainbow…
from your own words Tulika
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I truly enjoy looking through on this site, it has fantastic articles. “The living is a species of the dead and not a very attractive one.” by Friedrich Wilhelm Nietzsche.
My son started with sticks. We would go to the park when he was very young, he would find a stick and sit down and twist it while all the other kids played. For years now, it has been a drinking straw. He has to have it bent just right and he spins it in front of his face while he watches TV and that is when he is happiest. I hate Autism, my son scores very low in IQ, and what it has stolen from my life and future, but he does use that straw.
Loved your Google fence.
Colorful , beautiful & looks like a rainbow for me & Ved is already colorful beautiful, just wait Tulika , he will stand out like a Rainbow…
from your own words Tulika
Tulika, your story / experience took me down the memory lane of my brother who always look for soft thread to play with.
Disha, isn’t it funny how we find connection with each other
I came to your Saved by the straw ⋆ Little thoughtlets from the world of Autism page and noticed you could have a lot more traffic. I have found that the key to running a website is making sure the visitors you are getting are interested in your subject matter. We can send you targeted traffic and we let you try it for free. Get over 1,000 targeted visitors per day to your website. Check it out here: http://shorturl.van.ee/h
Thanks for reading my blog. I rely on the word of mouth of people who like to read my blog and I like it that way 🙂
I truly enjoy looking through on this site, it has fantastic articles. “The living is a species of the dead and not a very attractive one.” by Friedrich Wilhelm Nietzsche.
My son started with sticks. We would go to the park when he was very young, he would find a stick and sit down and twist it while all the other kids played. For years now, it has been a drinking straw. He has to have it bent just right and he spins it in front of his face while he watches TV and that is when he is happiest. I hate Autism, my son scores very low in IQ, and what it has stolen from my life and future, but he does use that straw.
OMG!!! this is exactly what my son does- bend and then spin it near his face!!!!